FAQs

We need to collect health information about you in order to conduct this study. We will do our best to keep your personal information private and confidential. However, we cannot guarantee absolute confidentiality. Your personal information may be disclosed if required by law.

Although there will be no benefits to you from this study, we hope that the knowledge gained from this study may help us better understand the causes of childhood diseases and conditions. It may allow us to develop better ways to diagnose diseases and to develop new and better medicines to treat diseases in the future.

You would need to let study staff collect a one teaspoon-sized blood sample from your child. Whenever possible, this sample will be taken at the same time as a scheduled blood test for routine purposes — so it will not require another needle stick. Parents who decide to take part would need to let study staff collect one blood sample from them as well. You would also need to answer a few questions and sign a written consent form. When you sign the consent form you are giving the study staff permission to access your child’s medical records and store them in a way that does not include any personal information.